Newsletter: Leading the Way for Lupus Research and Awareness

Having trouble reading this email? Click here to view in a browser. May 18, 2016   What is antiphospholipid antibody syndrome (APS)? Scroll down for the answer. Here Comes the Sun (and Your Photosensitivity) The sight of spring sunshine after months of dull winter skies gives many people a single-minded urge to lather on the tanning lotion and bask in the backyard for hours. But when you're living with lupus, soaking up the sun can mean setting yourself up for a flare. Learn about tricks and tools you can use to enjoy the nice weather while keeping harmful UV rays at bay. READ MORE New Global Survey Reveals Most People Have Serious Misconceptions about Lupus On World Lupus Day, the newly-launched World Lupus Federation - a coalition of lupus groups from around the world - announced results of one of the largest surveys ever conducted looking at awareness and attitudes about lupus among the general public in 16 countries. LEARN MORE KNOW LUPUS: Ian Harding As a successful actor and star of the Freeform network's hit television show Pretty Little Liars, Ian Harding has a busy schedule. When he's not on set, Ian uses his fame for a larger purpose: to advocate for people with lupus. Ian has teamed up with the Lupus Foundation of America to raise awareness about lupus. In this new video, Ian talks openly about his connection with the disease, and how his mother's diagnosis in 1994 has shaped his life. WATCH NOW Featured Events Advocacy Research Find an event near you through your local Lupus Foundation of America chapter. Click here to find your local chapter. Save the Date! May 20, 2016 Put on Purple Day Walk to End Lupus Now® events: May 21, 2016 Huntsville, AL Orlando, FL Temple, TX  May 22, 2016 Corpus Christi, TX  May 28, 2016 Waterloo, IA   June 4, 2016 Orange County, CA June 5, 2016 Denver, CO Palm Beach, FL  June 12, 2016 Milwaukee, WI  June 25, 2016 Columbus, OH Hampton Roads, VA   June 26, 2016 Wilmington, DE  Visit our website to find a Walk event near you!       Congressional Action Supports Unprecedented Lupus Research Program Yesterday, the U.S. House of Representatives Appropriations Committee passed a bill that includes funding for a lupus specific research program in the Congressionally Directed Medical Research Program at the Department of Defense. The vote is the culmination of more than a decade of Lupus Foundation of America-led efforts which gained momentum after the formation of the Congressional Lupus Caucus, which was established by the Foundation in 2012. LEARN MORE Reducing Steroids Associated with Lower Healthcare Costs in Lupus Treatment A new study suggests that cost savings may be another important reason for developing therapies that reduce the need for steroids for lupus treatment. Published in Arthritis Care & Research, this is the first large-scale study to document a relationship between the duration of steroid use and the cost and use of health care resources among adults with lupus. LEARN MORE Research Awareness New Study: Predicting Risk of Miscarriage During First Trimester A new study suggests that testing positive for lupus anticoagulant antibodies in the first trimester of pregnancy is the strongest predictor of pregnancy loss in women with lupus, compared with other pregnancy risk factors associated with lupus. LEARN MORE Pump up the Purple! Get your company or office involved in raising lupus awareness and funds this May. Host a "dress down" day and wear your best purple casual attire on Put on Purple Day (Friday, May 20th). Compete with companies across the country and win great prizes along the way! GET STARTED     Become a Champion for Hope with your monthly gift of $10, $15, $25 or more to the Lupus Foundation of America and make a difference in the lives of those affected by lupus. Your support will help bring us one step closer to our vision of a life free of lupus. APS is an autoimmune blood disorder common in people with lupus. It causes blood vessels to become narrow and irregular as well as blood to become "sticky," increasing the risk for blood clots and complications such as miscarriages, heart attacks, strokes, and low platelet count.Learn more.  You are receiving this email because you are subscribed to the Lupus Foundation of America's newsletter. If you would like to unsubscribe or change your preferences, please click here. Lupus Foundation of America 2000 L Street, NW, Suite 410 Washington, DC 20036 Tel: 800-558-0121 Fax: 202-349-1156 lupus.org

 

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