Showing posts with label Lupus. Show all posts
Showing posts with label Lupus. Show all posts

Tuesday, May 8, 2018

World Lupus Day Pledge - Cannabinoid Derivative Studied for Lupus Pain - Low Impact Movement Tips - Lupus Awareness Month Toolkit

 
Lupus Foundation of America
Participate in World Lupus Day, May 10
The countdown to World Lupus Day on May 10 has begun. Participate early and join us and the World Lupus Federation in the 15th annual World Lupus Day by signing the pledge today to raise awareness and make lupus an international health priority. Together, we can make a difference for people affected by lupus around the world.

Sign the pledge
Move us closer to a cure this Lupus Awareness Month!
DONATE
Personal Journeys
Study on Synthetic Cannabinoid for Joint Pain
A new nationwide clinical trial from researchers at the Feinstein Institute for Medical Research is taking place to determine the effectiveness of a synthetic cannabinoid mimetic drug for joint inflammation in lupus.

Read more

Advocacy and awareness
Health Benefits of Low Impact Movements
Staying active is an important way to take care of yourself. Learn what low impact movements and activities other people with lupus incorporate into their daily routine to help manage symptoms and improve strength.

Get tips

DISCOVER THE EXPERT SERIES
JOIN LUPUSCONNECT
CONTACT A HEALTH EDUCATOR
Help Spread the Word During Lupus Awareness Month
Help raise lupus awareness this May with our Awareness Toolkit. You'll find everything you need including social media tools, infographics and fliers.
Get involved
Going the Distance for Mom and Lupus
Marlo Hemminger has always supported her mother as she's battled lupus. Now, Marlo is supporting her in a new way – running a marathon with Team Make Your Mark™.
Read more
New Study Underscores Why Lupus Needs More Awareness
According to a recently published study, lupus is among the leading causes of death in young women, further stressing the need for more disease awareness and research.
Learn more
Turning Wine into Dollars for Lupus
Since her mom's diagnosis with lupus, Gina has been devoted to raising funds and awareness for lupus. Find out how her company is giving back during Lupus Awareness Month.
Read more
New Opportunity to Participate in Study of Lupus Skin Lesions in Women
A new nationwide study evaluating the safety and efficacy of two investigational drugs in women with active lupus skin lesions is now accepting participants.
Learn more
 
Walk to End Lupus Now®

Spring is here! Be Powerful and join over 70,000 walkers in 60+ cities by signing up for a Walk to End Lupus Now® event in your community. Walk to End Lupus Now events will take place soon in Columbus, Ga., Corpus Christi, Texas, Fayetteville, N.C., Galveston, Texas, Jacksonville, Fla., Killeen, Texas, Memphis Tn., Ocean City, N.J., Orange County, Ca., Saint Louis, Mo., and Washington, DC.

Find these Walk dates or a Walk to End Lupus Now® happening near you!



Quote
"Thank you Lupus Foundation for all you do and all the information you provide. Ironically, I was diagnosed with Lupus on May 5th 2016. I had no clue what Lupus was and found your page on Facebook. My prayers go out to everyone affected by Lupus.♥"

-Veronica R., Facebook

Lupus Foundation of America

Lupus Foundation of America
2121 K Street, NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155 | Fax: 202-349-1156 | info@lupus.org

Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
WAYS TO GIVE
RAISE FUNDS
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Tuesday, April 10, 2018

Get Ready for Lupus Awareness Month - How to Maximize Doc Visits - Spring Cleaning Tips - Improving Lupus Clinical Trials

 
Lupus Foundation of America
Lupus Awareness Month is Almost Here
Join us in the nationwide effort to pump up the purple this May for Lupus Awareness Month! Help us raise awareness and funds for lupus research and education programs through PJ Day on May 2, World Lupus Day on May 10, and Put on Purple Day on May 18.

Get ready
Learn how to give with a donor-advised fund or IRA distribution
LEARN MORE
Personal Journeys
Get the Most from Doctor's Appointments
Living well with lupus means playing an active role in your care and treatment. This includes preparing for medical appointments ahead of time and creating a partnership with your health care team.

Read more

Advocacy and awareness
Lupus Experts Propose Actionable Solutions to Improve Clinical Trials
A new white paper published by leaders in clinical research provides proposals for improving lupus treatment trials and advances persuasive evidence for the FDA to consider in support of new approaches.

Learn more

JOIN REGISTRY
DISCOVER THE EXPERT SERIES
FIND A CHAPTER
Participate in PJ Day and Join a Nationwide Campaign to End Lupus
Far too often, people with lupus have "PJ Days," those days where they are too weak or too sick to get out of bed. Show your support for them by wearing your pajamas on PJ Day.
Support
Thousands of Advocates Urge Congress to Support Lupus Research Funding
Last month as part of our National Advocacy Summit, thousands of advocates across the country visited, emailed or called their elected officials to support lupus research funding.
Recap
Stress-Free and Healthy Spring Cleaning
For many, the Spring season also means Spring cleaning. Learn what strategies other people with lupus have for keeping cleaning routines healthy and effective.
Get tips
Prepare for Lupus Awareness Month and Create an "About Lupus" Speech
With Lupus Awareness Month around the corner, it's important to know how to explain lupus to others. Help spread awareness with a 30-second about lupus speech.
Be prepared

 

Walk to End Lupus Now®

Spring is upon us! Be Powerful and join over 70,000 walkers in 70 cities by signing up for a Walk to End Lupus Now® event in your community. Walk to End Lupus Now events will take place soon in Atlanta, Charlotte, N.C., Columbus, Ga., Corpus Christi, Texas, Cincinnati, Dallas, Harrisburg, Pa., Huntsville, Ala., Jacksonville, Fla., Fayetteville, N.C., Killeen, Texas, New York City, Ocean City, N.J., Orlando, Fla., Raleigh, N.C., Saint Louis, MO, Salt Lake City, UT., Houston, Galveston, Texas, Tampa, Fla., and Washington, DC.

Find a Walk Near You!

Quote
"I didn't know what Lupus was until a friend told me she had it, then another friend told me she lost her sister to it... #LearnAboutLupus!"

-Laura D., Facebook

Lupus Foundation of America

Lupus Foundation of America
2121 K Street, NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155 | Fax: 202-349-1156 | info@lupus.org

Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
WAYS TO GIVE
RAISE FUNDS
Twitter Facebook Instagram Youtube

Tuesday, March 13, 2018

Tips for Sleep - Make Your Mark this May - Lupus and Kidney Complications - Virtual Advocacy

 
Lupus Foundation of America
Enhance Your Lupus Knowledge
The Expert Series is our new educational video series featuring empowering presentations from leading lupus experts. Launched this January, each installment focuses on helping you live well with lupus. Our recent episodes concentrate on financing medical care and managing and preventing flares. New segments are posted the third Thursday of every month. You can check out our current episodes now, and subscribe to receive a notification when new episodes become available.

Watch
Leave a legacy by helping people living with lupus
LEARN MORE
Personal Journeys
Make Your Mark this May
With Lupus Awareness Month approaching this May, it's never too early to plan how you will Make Your Mark in supporting the fight against lupus. Mallory Nwaokai kicked off her Make Your Mark fundraiser in 2017. This year, she's excited to meet a higher fundraising goal.

Read more

Advocacy and awareness
Sleep Well Despite Lupus
Not getting enough sleep can mean more than being groggy, it can also increase inflammation in your body. But, falling asleep isn't always easy, especially when you're dealing with pain or other symptoms of lupus. Learn what strategies people with lupus use to get enough sleep.

Sleep tips

JOIN REGISTRY
CONTACT A HEALTH EDUCATOR
FIND A CHAPTER
March is National Kidney Month
It's estimated that up to 60 percent of all people with lupus will develop kidney complications. Take the time to learn how lupus affects your kidneys.
Learn more
Take Action, Join Virtual Advocacy Day
On March 21, lupus advocates unable to attend the National Advocacy Summit will ask legislators to support critical lupus research funding. Become an advocate today!
Sign up
Healthcare Hero
Tracoyia Roach is our 2017 Lupus Foundation of America Gina M. Finzi Student Summer Fellowship recipient. A personal loss led her to pursue a career in lupus research.
Read more
Raising Funds with Dancing and Rhythm
Graciela Barco heard about the Walk To End Lupus Now in 2015. Since then, she has formed a team and each year holds a Zumbathon to raise money for the walk.
Read more
Walk to End Lupus Now®

Spring is almost upon us! Be Powerful and join over 70,000 walkers in 60+ cities by signing up for a Walk to End Lupus Now® event in your community. Walk to End Lupus Now events will take place soon in Atlanta, Birmingham, Ala., Charlotte, N.C., Cincinnati, Dallas, Galveston, Texas, Harrisburg, Pa., Houston, Huntsville, Ala., New York City, Orlando, Fla., Raleigh, N.C., Salt Lake City, UT., San Antonio, Tampa, Fla., and Washington, DC

Find these Walk dates or a Walk to End Lupus Now happening near you!

Quote
"Thank you for all that you do. I was diagnosed in early childhood, and 43 years later I have strength and hope from the love of people like you! I have lupus, but lupus doesnt have me!"

-Sara B., Instagram

Lupus Foundation of America

Lupus Foundation of America
2121 K Street, NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155 | Fax: 202-349-1156 | info@lupus.org

Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
WAYS TO GIVE
RAISE FUNDS
Twitter Facebook Instagram Youtube


Wednesday, February 21, 2018

NIH Datasets Will Accelerate the Quest for New Lupus Treatments

 
Lupus Foundation of America

 

 

 

 

NIH Datasets Will Accelerate the Quest for New Lupus Treatments  

Lupus experts around the world will mine this invaluable biomedical resource in the search for 'Tomorrow's Cures.' 

The National Institutes of Health today released important new datasets that will help clinical investigators discover new ways to treat lupus and rheumatoid arthritis (RA). The datasets were developed through the Accelerating Medicines Partnership (AMP), that was launched in 2014 as a public-private partnership to spur development of new therapeutic options for lupus and RA. The Lupus Foundation of America is a leading partner of the AMP program.

The new datasets will provide valuable information about the structure and properties of individual cells in lupus and RA disease tissue. Armed with this new insight, researchers will gain a clearer picture of the biological pathways and other factors that cause people to develop these diseases. The data enables investigators to identify specific treatment targets that can halt or impede the progression of lupus and RA, an important step toward developing new effective therapies for these conditions.

"Lupus is the prototypical autoimmune disease," said Sandra C. Raymond, Chief Executive Officer of the Lupus Foundation of America. "Finding answers that explain what pathways lead to development of lupus may provide clues not only to the causes of lupus but other autoimmune diseases. Our hope is that these efforts will lead to a new understanding of the underlying causes of lupus along with targets for the development of new treatments that will improve the quality of life for all people with lupus."

Read more about today's announcement on the NIH/NIAMS website.

 



Thursday, February 15, 2018

Watch Now! The Expert Series, Episode 2: Financing Your Medical Care

 

 

 

Learning opportunities email header
 

The Expert Series by Lupus Foundation of America

The costs of doctor visits, medical bills and medications can really add up. Whether you have health insurance or are uninsured, when it comes to financing your care it is important to be a smart consumer and know your available options.

In this month's episode from The Expert Series, learn about Financing Your Medical Care with one of our Health Educator's, Ashley Holden M.Ed., CHES.

Watch here

Each new episode from The Expert Series will cover a different topic and will be posted on the National Resource Center on Lupus every third Thursday of the month. 

 


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Lupus Foundation of America
2121 K Street, NW, Suite 200
Washington, DC 20037
Tel: 800-558-0121
Fax: 202-349-1156
lupus.org
 

Tuesday, February 13, 2018

Navigating Relationships - Benefits of Social Support - Spice Up Valentine's Day - Add Your Voice to the Fight

 
Lupus Foundation of America
7 Steps to Building Your Social Support Network
Getting social support to help you cope with lupus can greatly benefit your health and wellbeing. It can provide a sense of belonging and community, and is critical to keeping the normal stresses of life in check. There are several ways to get social support, but it's important that you have a support system in place that you can count on. Develop and strengthen your network using these seven tips.

Learn more
Show your love. Make a monthly donation. Become a Champion for Hope.
GIVE NOW
Personal Journeys
Make Lupus a Priority on Capitol Hill
Add your voice to the fight by joining us for the 2018 National Lupus Advocacy Summit featuring educational programming, interactive sessions and the opportunity to meet your elected officials to urge them to take action to support lupus priorities.

Make a difference

Advocacy and awareness
Improving Intimacy Between Partners
Having a satisfying sex life can be difficult when you're dealing with pain, fatigue and side effects of medications for lupus. But it doesn't mean that intimacy has to disappear. Here are four strategies for improving intimacy and sexual health in your relationship.

Read more

JOIN LUPUSCONNECT
CONTACT A HEALTH EDUCATOR
BECOME AN INSIDER
Making Relationships Work For You
Navigating relationships can be difficult, especially when you have an unpredictable disease like lupus. Find out how our Sharing the Journey participants (people with lupus) approach their relationships.
Read more
Atacicept Study Data Shows Promising Results
Findings from a Phase IIb clinical trial investigating Atacicept as a potential new lupus treatment show that it is safe and may benefit people with high levels of disease activity.
Learn more
Big Miles for a Big Purpose
Danica Winkley is training for a marathon to honor her late sister and raise funds for lupus research through the Team Make Your Mark program. Will you run for lupus?
Make your miles matter!
A Young Advocate Making Her Voice Heard
Taylor Kassel realizes that elected officials are influenced by her story, and that her advocacy efforts are helping to increase support for lupus funding and research.
Read more
Walk to End Lupus Now®

Join over 70,000 walkers in 60+ cities by signing up for a Walk to End Lupus Now® event taking place in your community. Walk to End Lupus Now events will take place soon in Atlanta, Birmingham, Ala., Cincinnati, Dallas, Harrisburg, Pa., Orlando, Fla., Palm Beach, Fla., Raleigh, N.C. and San Antonio.

Find a Walk to End Lupus Now® happening near you!

Quote
"Thank you so much from ALL of us with lupus for taking such an active roll in looking for the cure."

-Kathy W., Facebook

Lupus Foundation of America

Lupus Foundation of America
2121 K Street, NW, Suite 200
Washington, DC 20037
Phone: 202-349-1155 | Fax: 202-349-1156 | info@lupus.org

Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
WAYS TO GIVE
RAISE FUNDS
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