Newsletter: Updates and Inspiration

Having trouble reading this email? Click here to view in a browser. June 28, 2016   Should I get my car windows tinted? Scroll down for the answer. Get Fit: The Summer to Start Anew Summer is a good time to hit the refresh button and commit to starting and keeping an exercise routine to improve your overall health and well-being. Your success hinges on what you choose to focus on in the way that you think about exercise. Focusing on how you will feel and how your life will improve will produce the best results from any exercise routine. Click below for tips on starting and sticking to your get fit goals. READ MORE Ask the Experts: 3 Ways You Can Improve Lupus Research Engaging people with lupus is essential for research to be successful and meaningful. Your participation in studies and clinical trials can help guide and inform lupus research. In this month's Ask the Experts, learn three ways to get involved. LEARN MORE Kylie Katz: "I won't let lupus define who I am." Kylie Katz is 16 and has already learned some of the biggest and toughest lessons in life. When ring-like rashes started appearing on her face, her family and doctors thought that she had ringworm. But the medications didn't work, so she had blood tests and a biopsy before being diagnosed with discoid lupus approximately six months later. Read on for the end to her inspiring story. READ MORE Featured Events Education Research Find an event near you through your local Lupus Foundation of America chapter.  Click here to find your local chapter. June 30, 2016 Walk to End Lupus Now Launch Party Portland, OR  July 9, 2016 Lupus Living and Learning Seminar Los Angeles, CA          Changes Ahead for the Nutrition Facts Label The Food and Drug Administration (FDA) recently released a new Nutrition Facts Label, which will begin to appear on packaged foods in 2018. Updates to the label will help people with lupus make healthy decisions that meet their unique dietary needs. LEARN MORE New Study on Stress Management As a member of Patients, Advocates, and Rheumatology Teams Network for Research and Service (PARTNERS), we aim to improve healthcare and advance medical knowledge. This new $4 million study will examine the medical impact of mindfulness interventions for lupus patients. LEARN MORE Research Lupus Voices Progress in the Delivery of New and Safer Therapies The European League Against Rheumatism Congress is a premier global meeting in the field of rheumatology. At this year's meeting in London, the Lupus Foundation of America announced results of a first-of-its-kind study that could expedite the delivery of new and safer therapies to people with lupus. READ MORE A Very Memorable Walk for Rodeilyn Rosario We think Walk to End Lupus Now™ events are always memorable, but this year's New York walk stands out to Rodeilyn Rosario, because she got engaged at the finish line! Rodeilyn's story is another example of how support and positivity is essential to living well with lupus. READ MORE   The Fourth of July is around the corner. What better way to celebrate summer than to throw water balloons in the face of lupus? During July, online contributions will be matched by our National Board of Directors.That's twice the amount to support potentially life-saving treatments! If you are especially photosensitive, and spend a significant amount of time in your car, it may be a good idea to have your car windows tinted. Standards and regulations may differ among states, regarding tinting car windows. If your state prohibits window tinting, you may be able to get a note or form signed by your physician stating why you need tinted windows. Generally, people who are photosensitive can obtain a form from their local department of motor vehicles (or the state's public safety department) to be filled out and signed by their physician. You can contact your local department of motor vehicles for information in your state. You are receiving this email because you are subscribed to the Lupus Foundation of America's newsletter. If you would like to unsubscribe or change your preferences, please click here. Lupus Foundation of America 2000 L Street, NW, Suite 410 Washington, DC 20036 Tel: 800-558-0121 Fax: 202-349-1156 lupus.org

 

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