Newsletter: Sharing the Journey

New resources, research & how we're advocating for you. August 10, 2016   What are 504 Plans and Individualized Education Plans? Scroll down for the answer. Sharing the Journey Our new series – Sharing the Journey – is by you and for you. Through this series of articles intended to educate and inform, we will highlight the perspectives and personal experiences of people who struggle with lupus each day. READ MORE Ask the Experts: How does lupus affect my eyes? This month, opthalmologist Jonathan D. Solomon, MD answered your questions about dry eyes, light sensitivity, and the possible side effects of Plaquenil® and methotrexate on eye health. This sparked a lot of conversation on our Facebook page. Read the answers and join us online to discuss. Hilary Greek: The Brutal Toll of Chronic Pain Hilary Greek is a 41 year old woman with lupus and fibromyalgia. As a Leader Against Pain for the National Fibromyalgia & Chronic Pain Association, Hilary shares her story to put a face behind the hidden scourge of chronic pain. This is Hilary's story, in her own words. READ MORE Featured Events Watch Advocacy Find an event near you through your local Lupus Foundation of America chapter. Click here to find your local chapter. Walk to End Lupus Now® events: Sept. 10, 2016 Seattle, WA Sept. 17, 2016 Phoenix, AZ Sept. 24, 2016 Los Angeles, CA Portland, OR  Oct. 22, 2016 Boston, MA Oct. 23, 2016 San Francisco, CA  Visit our website to find a Walk event near you!       Discover Your Power! Summer is the perfect time to rally your friends and family to join you for one of our upcoming Walk to End Lupus Now events. Check out our video and see what it's like to experience first-hand the power of the movement to end lupus. Share the video with your friends and family on social media and register your team today! WATCH NOW Access to Treatments One of our key goals is to ensure people with lupus have access to the care and treatments they need. Recently, access to a few vital treatments has been challenging to obtain, specifically access to quinacrine, hydroxychloroquine, and Benlysta®. LEARN MORE Education Support Stem cell research: This could change everything A new adult stem cell study could provide a potentially transformative treatment for lupus. This first-of-its-kind phase II clinical trial of mesenchymal stem cells for the treatment of moderate to severe lupus could diminish the long-term effects of lupus, help lower medication dosage, stop damage to vital organs, and save lives. LEARN MORE Prescription Assistance It can be difficult at times to pay for prescription medications. There are several assistance programs that are available to help those who have no medical/medication insurance, need assistance with medication co-pay, or have had an insurance company deny payment. NeedyMeds offers a free drug discount card that may provide assistance in being able to afford medications as an alternative to insurance. READ MORE   We're moving! As of August 29, our new address will be 2121 K Street NW, Suite 200, Washington, DC 20037. Phone numbers will remain the same. We look forward to welcoming you in our new office and continuing our mission to create a life free of lupus. The health complications and treatment needs associated with lupus can lead to frequent absences from school and extracurricular events. Teachers and others who supervise your child's activities need to be aware that your child's absences could interfere with schoolwork deadlines and other responsibilities. Learn more.  You are receiving this email because you are subscribed to the Lupus Foundation of America's newsletter. If you would like to unsubscribe or change your preferences, please click here. Lupus Foundation of America 2000 L Street, NW, Suite 410 Washington, DC 20036 Tel: 800-558-0121 Fax: 202-349-1156 lupus.org

 

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