Things we wish friends knew about lupus

Raising awareness about life with lupus. September 28, 2016   My child has lupus. Who should I tell? Scroll down for the answer. 10 Things I Wish Everyone Understood About Lupus Unless your friends know somebody else who's living with lupus, chances are they won't get it right away. But don't worry, they'll catch on. Just fight the urge to roll your eyes and be ready to tell them these 10 things—sooner or later it will sink in.  Read more Mental Health Issues in Children and Teens with Lupus Mental health can have a dramatic impact on physical health – either positive or negative. Coping with the emotional challenges of lupus, and knowing how and when to get help if you're a young person with the disease, can make all the difference.  Read more   Kendall Eilerman: Fundraising Champion Kendall Eilerman was just 18-years-old and a freshman in college when she was diagnosed with lupus. She decided that she was going to fight the disease and raise money for research toward finding a cure. Kendall and "Team Kendall" serve as an inspiring example of the power of commitment, dedication, and hard work.   Read more Featured Events Lupus Voices Support   Upcoming Walk to End Lupus Now® events: Saturday, October 1 Indianapolis, IN Saturday, October 15 Rio Grande Valley, TX Richmond, VA Saturday, October 22 Boston, MA Sunday, October 23 San Francisco, CA Cranford, NJ Saturday, October 29 Victoria, TX Sunday, October 30 Philadelphia, PA Saturday, November 5 Melbourne, FL     Our 10 Favorite Quotes from Fabulupus Being young and adjusting to life with lupus is hard to go through alone, but reading a book by someone who has been in your shoes can help. Written by Jessica Kundapur and Jodie Nimigon-Young, this book is a guide to living well and managing the disease as a young adult with lupus.  Read more Soothe Chronic Pain with Mindfulness Meditation Pain is a persistent part of daily life for many people living with lupus. Doctors can recommend an arsenal of prescription and over-the-counter medications, from aspirin to antimalarial drugs. But when the pain just won't leave your body, you can turn inward to find relief.  Read more Research Advocacy PhRMA Medicines in Development Report Working with the Pharmaceutical Research and Manufacturers of America (PhRMA), we recently released the Medicines in Development report. The report cites 39 medicines in development for lupus and highlights the story of Stacey Kozel, who has been able to accomplish amazing feats despite having lupus. Learn more Encouraging Diversity in Clinical Trial Participation Recently, the FDA Office of Women's Health and NIH Office of Research on Women's Health announced a new partnership to encourage women of different ages, races, ethnic backgrounds, and health conditions to participate in clinical trials.    Read more   Your child's teachers, leaders of organized activities, friends, and friends' parents need to be aware of how lupus affects them. It is your role to advocate on behalf of your child so your child can be safe, healthy, and treated fairly.  Read more You are receiving this email because you are subscribed to the Lupus Foundation of America's newsletter. If you would like to unsubscribe or change your preferences, please click here. Lupus Foundation of America 2121 K Street, NW, Suite 200 Washington, DC 20037 Tel: 800-558-0121 Fax: 202-349-1156 lupus.org

 

nonprofit software