|
If you or a loved one has been diagnosed with lupus, we have an opportunity we think might interest you: we would like to invite you to join our Research.forME Lupus Registry.
This registry was created as a place for people with lupus to provide information that will help researchers and clinicians understand how lupus affects a person living with the disease and a way to inform you of relevant research studies.
JOIN NOW
Lupus is one of the most mysterious diseases on earth—it can affect everyone differently and there is no known cure or cause.
This registry is a tool that provides researchers access to information that will help them improve research and give them insight into the progression, potential environmental factors of the disease, and the average quality of life.
By completing a 45-minute online survey with your health information and experience with lupus, you could help researchers gain a better understanding of the disease and improve the lives of people with lupus. The registry is IRB approved and identifiable information such as your name and contact information will be protected.
The more people with lupus who join the registry, the better chance we have at making a change. Spread the word and join our fight to end lupus. For more information about the registry please visit our website or send your questions to registrycoordinator@lupus.org. Sincerely, Leslie M. Hanrahan
Vice President, Education and Research
Lupus Foundation of America
| 
Posts
No comments:
Post a Comment