June Newsletter from the Lupus Foundation of America. | Be Fierce, Take Control | | Are you fierce when it comes to taking control of your health? This question is at the core of our new Be Fierce. Take Control.™ awareness campaign launching this week. The goal of the campaign is to raise awareness of the signs and symptoms of lupus and ultimately reduce the time to diagnosis. The focus will be on educating and empowering young African American and Latino women, who are most at-risk for developing lupus. Learn more | Consider becoming a monthly donor and build a future without lupus. | | | How to Prepare for a Doctor Visit | Preparation is the key to getting an accurate diagnosis in today's managed care environment where the time you spend face-to-face with your physician is limited. These six tips can help you make the most of your appointment. Learn more
| | Running For Her Life | Alison Eckberg has used running to regain control of her life after a lupus diagnosis and is refusing to let the disease define her. Now she's set her sights on the Seattle Half Marathon with the help of our Team Make Your Mark program. Read more
| | Make Your Voice Heard on Lupus Drug Development | The Lupus PFDD Meeting is a one-of-a-kind forum for the entire lupus community to share its collective voice with the FDA in an effort to improve and accelerate the development of new treatments for lupus. Share your story! Learn more | Strategies for Managing Fatigue | By making some adjustments, people with lupus-related fatigue can often learn how to avoid pushing themselves to exhaustion. Check out these strategies for helping you to better manage fatigue. Read more | 5 Need-to-Know Facts about Sun Safety | There's a lot to know when it comes to the sun and lupus – from UV rays to vitamin D to sun protection factor (SPF) levels in sunscreen and more. Here are five facts that will help you be safer in the sun. Read more | Sharing the Journey: Explaining Lupus | This month, we asked Sharing the Journey participants to tell us the one thing they want people who don't know anything about the devastating disease to understand. Journey answers | | Special thanks to EMD Serono, a 2017 Lupus Foundation of America Supporter. | Last Call for the National Policy Summit: This is your last chance to register for the National Policy Summit set for June 26-27 on Capitol Hill! Registration closes on June 19 for this empowering event that provides lupus activists the opportunity to share their story and educate members of Congress about why more must be done now to advance lupus research. Register Now
| Walk to End Lupus Now events will take place soon in Des Moines, Iowa; Lexington, Ky. and Wilmington, Del. For these walk dates or to find a Walk to End Lupus Now happening near you in the fall, please click here.
| | "To be the first person in your family to have lupus is hard. People even think I'm just saying my body hurts all over just to be complaining. When I say I have lupus and the first thing they ask is 'can I catch it?', that makes me so mad."
-Jennifer C., on the struggle to explain lupus to others. | | | |
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